How can you connect to others?

If you are a patient or a carer looking to connect with others, please click one of the options below and you will be linked to a dedicated Facebook group.

Connect to other patients

A Facebook group for patients affected by rare conditions where you can find support and share information. You'll also be able to keep up to date with the work of Rare Disease UK, as well as hear about other ways you can get involved with Rare Disease Day activities for 2020.

Connect with patients now

Connect to other carers

A Facebook group for the families and carers of adults and children affected by rare conditions where you can find support and share information. You'll also be able to keep up to date with the work of Rare Disease UK, as well as hear about other ways you can get involved with Rare Disease Day activities for 2020.

Connect with carers now