Sending your money to us

Please send your donations to us as soon as you have finished your fundraising, here’s how to get the money to us:

  • Donate via the website: using a credit or debit card donate.

  • Cheques: please make payable to Rare Disease UK or Genetic Alliance UK and send to Genetic Alliance UK, CAN Mezzanine, 49-51 East Road, London, N1 6AH. Please include a note to say how the money was raised with your contact details so we can send you a well deserved thank you letter!

  • Bank transfer: if you want to transfer your collected funds to us email [email protected] and we will send you the details.

  • Cash: Please do not send cash as we are unable to accept cash donations.

Download our donation form - don’t forget to tick the box for GiftAid.

Where your money goes

Money raised for Rare Disease UK will be used to support our vital work for patients, families and carers of those affected by rare diseases. It will help us to campaign on behalf of patients and their families, so they have access to timely care, treatment and the information they need to manage their rare condition.

  • £50 pays for one batch of printing of one of our patient experience reports for a parliamentary meeting

  • £100 pays for a family’s travel to speak at one of our Rare Disease Day events across Britain

  • £200 covers the cost of a school pack and materials to raise awareness or rare diseases with students.

  • £500 allows us to hold meetings to bring together rare disease patients from across the UK to ensure patient voice is at the heart of our campaign.

  • £1,000 pays for a rare disease video, helping to reach tens of thousands of people.

  • £2,000 pays for a parliamentary event to raise awareness of rare diseases – to ensure rare diseases are considered a public health priority by Government and decision makers.

Read more about how our work supports the rare disease community in our News & Events section.

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