Stars in the sky

Born with Goldberg-Shprintzen Megacolon syndrome- deletion of chromosome 10.


Malakai was diagnosed with Goldberg-Shprintzen megacolon syndrome at 18months. For me as a parent it was a massive shock to find out how rare the syndrome was at the time he was the youngest child in the UK to be diagnosed there was little information about the syndrome so I didn’t know how his future could be predicted but he is growing up to a very determined happy young man!

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