Stars in the sky

Autoimmune autonomic ganglionopathy, multiple rare diseases


Though I deal with multiple rare diseases, my most recent was probably the most difficult. After more than 9 specialist, we found an answer. My advice for any patient is to go by what you feel and fight. Get a second opinion, change doctors or change hospitals if you have to. Remember to take care of yourself, it's something as advocates we all tend to forget. 💜

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