Close
Rare Disease UK Rare Disease Day

Sign up to our mailing list

Sign up to stay up to date with the latest Rare Disease UK news and events. Find out how we handle and protect your information in our Privacy Policy.

More

Rare Stars

Showing 1491 Rare Stars

I call my Behçet's Disease "My aliens" I imagine their mischievous faces.

Fra

 It took over 10 years to diagnose my Behçet's Disease

Fran

 BEHCETS DISEASE LIKE TOMATO, PRONOUNCED DIFFERENT WAYS BUT IT STILL SUCKS

BDer

 Witteven Kolk Syndrome

Hunter Easton

 Always in my heart miss you jojo you were 1 in a million

Anonymous

 Non Hodgkin's lymphoma peripheral T cell not otherwise specified and HEDS

Leanne

 For Summer who has Trisomy 9 Mosaic. Less than 200 diagnosed worldwide!

Charli

 I'm sharing a star for my mum. Whos been incredible throughout my diagnosis

Anonymous

 Sick of being sick 😥

Jo Davies

 2p25.3 deletion. 10q26.1 duplication. UNIQUE to just me.

Rhegan-Sofia

 Sprengels is a rare genetic disease

Carrie Anne jaguar

 Sprengels is a rare genetic disorder affecting the shoulder

Holly jaguar
Scroll to top
Previous Page Next Page