Thank you so much for visiting our site and helping us to illuminate the rare reality for Rare Disease Day 2019. there are some rules for using the site and how we allow you to use the social media assets generated.

We ask that you refrain from:

  • Promoting any corporate interests or products, or fundraising for yourself or your chosen charity
  • Use of any profanities, offensive language, or wording that may upset the patient community or the wider public
  • Engaging in any bullying or harassing content or behaviours around this campaign
  • Naming or identifying of individuals, including yourself. Please keep yourself safe online.

Rare Disease UK own all of the assets created and they are our copyright. Breaching any of the above means you are breaching our copyright and terms of use, and you will be asked to delete the content and we have the right to block you from using the site in future. In the most extreme cases, we are able to take legal action.

This is a public campaign and website, by taking part and adding your star you are consenting that others may view or share the content/social media asset that you have produced, including Rare Disease UK.

It is necessary for us to collect the data so that we can monitor the use of the SmartHub and our assets. You can find how we use and store your data in our Privacy Policy.

By using this platform you are agreeing to Rare Disease UK’s terms and conditions outlined above.

If you have any questions, or would like to talk to one of the Rare Disease UK team, please email info@raredisease.org.uk or call 0207 831 0883.